Here We Go Again

Well, third grade has almost wrapped up for Tate. There is just under a month left of school. That said, there is still one MAJOR hurdle left for us to overcome. Next week, the "end of grade" tests (which I will refer to as EOGs) begin. These tests are standardized tests that were brought about by the "No Child Left Behind" program. But in reality, it seems like quite a few kids are left behind.

Let me take a moment to post a letter I emailed to the principal of Tate's school. I wanted to set up a meeting with her and Tate's teacher, but they wanted to set it up next week, when the EOGs are happening!

Hi Mrs. Cooper,

I am afraid that meeting up next week simply will not do. This matter is
pressing and requires immediate attention.

Having a child with ADHD has certainly been a struggle. At the beginning
of the school year, my husband met with Mrs. Stephenson, the assistant
principal and the speech therapist to lay out exactly what was going on
with Tate. I was unable to attend because I was in the hospital. He brought
the information from the psychologist who tested her and the recommendations
that doctor has made to help facilitate Tate's learning experience. It has
been common knowledge from the beginning that Tate has ADHD.


What I do not understand is why it was never brought to my attention by anyone
at SVES that special testing arrangements could be made for Tate (and other kids
with ADHD) when she takes the EOGs? I found out on Friday from a client I was
working with who explained that her little brother has ADHD and always has to have
special arrangements made for standardized testing. And just about a month ago,
I had a meeting with Mrs. Stephenson about her concerns with Tate and the EOGs.
She explained to me the process of testing and the one opportunity for retesting
and then the process of the meeting where a teacher from each grade level is
present, as well as you, and we state our case about why Tate should be promoted.
She also gave me a list of things we can do to help with her studying skills.
I have downloaded all of the practice EOG exercises, as well as made copies of
quite a few reading exercises that Mrs. Stephenson gave me last week. I am doing
everything I can on my end.

I am quite certain that I was NOT made aware of these special arrangements at the
meeting with Mrs. Stephenson because after that meeting the main thing I researched
was opting out of the test, but while the State does allow that to happen, Union
County does not. Had I known there were other options, I would have pursued them.
I do everything I can to give my daughter a fighting chance. She is extremely
bright, but just does not have the skills to learn how to harness that intelligence.
Tate does have an IEP, but it primarily focuses on her lisp and what actions need to
be taken to improve her speech. It does mention her ADHD, but it is not the central
issue. I think once this is reviewed again at the end of the year, we need to do
something to get the focus more on the ADHD. Sure, I am concerned about her speech
too, but the ADHD seems to be the biggest stumbling block when it comes to her
education.

I feel like her rights as a "special needs" child have been compromised and she has
been set up for failure. I also know that if she repeats 3rd grade she will be
bored by going over information she has already gone over and I think the
repercussions of that could be far more detrimental than we think.

I'm am sure you will be hearing from me quite a bit in these last few weeks.

Thanks for your time,

Courtney Zepeda-Hawkes


(The principal emailed back and we have a meeting with her and the teacher tomorrow.)



**An IEP is an "Individualized Education Program" **

You can read more about it here:
http://en.wikipedia.org/wiki/Individualized_Education_Program


So far this year, Tate has made B's and C's on her report cards. Her main problems have been her concentration and ability to complete tasks on time. At one point her math skills were weak, but now it looks like her reading skills are weak. But if she fails one of the two sections of the EOGs, she will be held back. As I stated in the letter, there is one opportunity to retest. Beyond that, there is a meeting with the educators to discuss the situation and ultimately, the decision is made by the principal. Did I mention this was a NEW, interim principal?? Her predecessor left during spring break a couple of weeks ago. This just complicates issues more because this principal doesn't know Tate. What doesn't work in our favor is that Tate is one of the youngest kids in her class, it's easy for the powers that be to say she'll be fine if she's held back because she will still be with kids her age. That's a tough one to argue.

I'm so tired of arguing. I'm so tired of having to fight tooth and nail. I wish I could find a teacher who was experienced with ADHD kids. I wish I could home school, but Tate needs the social interaction and gauging from how personally she takes things when we do homework together, I know it would never work. Not to mention, I have no idea what it will take to help her absorb and digest information.

On a side note, I am growing more and more frustrated with Tate's teacher. The other day she told Tate (within earshot of other kids) that Tate will be in 3rd grade again if she doesn't pass the EOGs. I know Tate wanted to tell the class about her trip to England over Spring Break, but her teacher wouldn't let her. (Last year it was a requirement in her class.) Then yesterday, they were discussing space shuttles, since Endeavor is due to launch on Monday. Tate tried to explain that she has seen a shuttle launch, but the teacher dismissed her and told her not to talk when she was. Apparently, the opportunity to contribute to the conversation never came up.

It's these sorts of things that make me wonder if the teacher is actually following any of the suggestions made by the psychologist? I'm thinking probably not. It seems like she treats Tate like an underachieving student. But I know, this is just speculative opinion on my part, I don't know what goes on in the classroom.

I have friends who are educators and I hope I don't offend them. All I know is what I am going through.

The Daytrana patches we started her on seem iffy, at best. Her teacher hasn't noticed any differences. One 10 mg patch apparently doesn't do anything. Two patches keeps her up at night. We haven't even tried 3 patches! We have started telling her to take them off at lunch, instead of when she comes home. But so far, we are in limbo. We are going to try for another month, then we are going to meet up with her doctor again.

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3 AM

Well, here I lay, 3 AM. I'm not sure what time it happened, but I had a grand mal seizure. I have a history of seizures. It started when I was 26.

Everytime it's the same, I am awakened to Dom, who is desperately trying to keep me awake. I can only compare it to like my brain rebooting. I can't stay awake and I have no recollection of the seizure. My tongue is usually chewed to bits...the last one I had left me with a speech impediment for weeks. My limbs are usually too weak for much of anything. Tomorrow, I will be extremely sore from having my entire body tensed up. It almost feels like I'm drunk.

I always have these in my sleep. I've had my head scanned, had a sleep study...but there are no explanations why I have a seizure disorder at all. I hate feeling out of control of my own body.

I used to take medicine to prevent them. But stopped taking them when Dom and I separated. I guess it's time to work the medication back into my life.

Right now, I literally cannot bring myself to roll over, I am that weak. I have to be up in a few hours. The biggest pain in the ass is that I am not supposed to drive for a month after I have one. I guess it's a good thing we are going to London next week, for a few weeks.


- Posted using BlogPress from my iPhone

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Blog Games: Website ABC’s

The Rules:

Type the ABCs into your browser’s address bar and list the first website that pops up for each. No cheating! Use the first website that pops up in your address bar! After you’re done “tag” five of your bloggy friends to do the same!


A) Amazon.com

B) Beautycrunch.com

C) CNN.com

D) DListed.com

E) Ebay.co.uk

F) Facebook.com

G) Gmail.com

H) HardCandy.com

I) IAmGlamourpuss.blogspot.com

J) etsy.com/shop/Jewelrybyglamourpuss (Nothing that begins w/J)

K) Kayak.com

L) Lamebook.com

M) MyFitnessPal.com

N) NYXCosmetics.com

O) OCCMakeup.com

P) photosbyglamourpuss.daportfolio.com

Q) No Qs

R) Regretsy.com

S) SleekMakeUp.com

T) ThePirateBay.com

U) Ulta.com

V) VogueWigs.com

W) Wikipedia.com

X) X17online.com

Y) YouTube.com

Z) ZenniOptical.com

Whew, that was some work!! Enjoy!

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ADHD 18 Months Later...and more.

Well, it's been about 18 months since my daughter, Tate, was diagnosed with ADHD. We've had her on the drug Strattera, which is not a stimulant, and it seemed to work well for a while. Over the past couple of months, we've noticed some changes. Tate's still struggling with reading directions and finishing assignments in school. The big thing looming overhead these days is the end of grade testing. Her teacher is really worried she will be able to successfully endure a 3-hour standardized test. And if she doesn't pass the test, she doesn't go to 4th grade. She's incredibly defiant about everything at home, which results in her feeling like we are coming down on her all the time. It feels awful knowing she is unhappy and not knowing what to do about it.

She is still insanely picky when it comes to food and clothing. She has tried a couple of new foods over the past week, so that has been inspiring. But the clothes situation just seems to get worse and worse. It doesn't help that Spring has sprung and she really could use some new clothes. Tate got new shoes last week and it was one of the most excruciating experiences. She tried on EVERYTHING Payless and Target had to offer, but ended up settling on moccasins she didn't like the look of, but she did like the feel of.

So, today her Dr. told us that he thinks we should try to find her an occupational therapist to work with the "sensory integration dysfunction." This would include the sensitivity to tactile things, textures of food, etc. This is good news because we were thinking she still needed a therapist, even though we were uncertain what good a therapist would be when it came to the issues that could make everyday life easier. At least now I have a direction to go in!

We also decided on a patch called Daytana for Tate. It is a stimulant, but unlike Ritalin, there are no extreme highs, then lows once the meds wear off. She puts it on the AM and we take it off before dinner. Odds are, she won't even need them on weekends. This seems more favorable since she would fight taking the Strattera. Of course, we are going to monitor everything and make sure she is doing well. If any problems arise, we will contact her Dr. This wasn't an easy decision, but we are really desperate for "normalcy."

So, how am I, you ask?

I'm still suffering from depression. I still haven't totally unpacked from moving home. It's difficult that my husband works crazy hours and I have to do a lot of the parenting by myself. I have a hard time sleeping. And then I find myself crashing out on the sofa until lunchtime. I feel guilty and horrible about that.

I'm back on the dieting thing. I'm using a cool website called MyFitnessPal.com. They have a app for the iPhone and it's really easy to track your exercise and caloric intake. I'm doing alright on the calories. But I know I could exercise more. I am just stifled by this depression and have the hardest time getting motivated. Then today I discovered I have gained weight and that was just like a punch to the gut. I know muscle weighs more and I have gone to the gym some, but it's still a letdown and I feel like I could do more. I just HAVE to make myself. I'm not sure how I will do it, but I will. My parents and Dom have all commented on how my face and mid-section have changed and that helps some. I think I'd be more motivated if I saw more changes.

I'm a work in progress...what can I say?

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The Tale Of A Toe

Toes are something we really take for granted. We wake up with ten little piggies, we go to bed with ten little piggies. Occasionally they can provide amusement when you pick something up off the floor with your feet. You can decorate them all silly at the nail salon. But what do you do when your little pig went to market and never returned? I don't know. But this is a reality my father is facing tomorrow morning.

If you don't know me so well, then you may not know that my dad has diabetes which has been treated off and on for quite a few years now. There have been varying degrees of seriousness when it comes to his condition. He went through spells where his eyesight was never quite right. Then he developed a wound, then later an ulcer on his big toe. This was about 3 years ago. He spent some time with a podiatrist, but without insurance, he couldn't keep it up for long. Then in November of 2009, he was in the hospital for a week seeking treatment for his toe.

Two weeks ago, my dad told my mom that his toe smelled. Then he told us not to worry, he figured out the source, which was a big pus ball. But he refused to admit it was infected. We all know what pus is right? White blood cells...trying to fight off infection! We tried to get him to go to the ER, but he had excuses against that. We tried to get him to set up an appointment with a doctor but he had excuses against that. Living life without health insurance does that to you.

In any event, his toe become so worrisome that he came to see a doctor he saw a couple of times after his last hospital stay. Fortunately, they set up an appointment for him to get into a wound care clinic today. While he was there and they were cleaning out the ulcer, a piece of bone came out. Yeah, I know...freaky.

And before he could get too far on the road back to his house, the clinic called my mom looking for him and explained it was urgent. My mom got ahold of him and told him to call. The next time she spoke to him, she asked what was up? He said, "They are going to amputate my toe." My father always likes to mess with your head so my mom didn't believe him at first. But no, I only wish it was a sick joke. Tomorrow, they are going to amputate his toe.

I suppose what's even more disturbing is that they are going to leave the wound open for a few days and see how the infection does. If it dwindles away, great. But if it lingers, something else is infected. Something else may have to go. My father has already said that he will not consent for anything else to be taken and that he refuses to be wheelchair bound. I'm upset that he would be so selfish and short-sighted...and while I understand his frustration(I felt suicidal when I was in the hospital in September), he has a family who loves him and needs him. My kids only have one granddad. And I don't want him taken away from them at such a young age, the way mine was. And the only thing that kept me going through my horrific hospital ordeal was my family. I did it for them...all of them. I cannot imagine life without my family, so it distresses me to see my dad speak so nonchalantly about leaving us all.

Even though there are some dents in the armor, he is still my super-hero. If he goes, who will I look to when I'm a damsel in distress and in need of her daddy? My time with him isn't up yet. We still have many Mel Brooks movies to watch and laugh at together. We still have so many things to see and do.

But I'm digressing...as for tomorrow...we will have to see what happens. Will he be able to walk? Yes. If it's just the toe, he can get an orthopedic shoe with a weighted prosthetic thing where his toe would be. This would help with his balance.
There's no reason why he couldn't go ahead and enjoy the rest of his years. I just really hope this doesn't completely break him. He was my first true love, but I think daddies are always that to their little girls.

Please keep us in your thoughts. I need positivity. I'm feeling pretty low and weak. Thank you.



My sister, Heather, my Dad, my Mom and Me.

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F*ck You, Cancer

**Please note, I wrote in November 2008. I recently felt the need to dig it out , dust it off and put it on display again. Cancer has crossed my path yet again and it infuriates me.**

Let me preface this with: anyone who is around me knows I have a foul mouth, sorry if my "sentence enhancers" offend and yes, it is indeed silly to rant in the form of an open letter to a disease...but I'm doing it anyway. Here goes...



Fuck you, Cancer,



You have touched my life in so many ways over the past few years or so and I have had it. In fact, I don't know anyone you haven't touched in one way or another. You are sneaky, you are relentless and your sole purpose is to create damage. You don't care who or what you damage...that doesn't matter at all. You do not discriminate...old, young, poor, wealthy, fit, not fit...it doesn't matter to you, you'll take what you can get...you fucking leech.



A friend of mine's Dad is having surgery for prostate cancer tomorrow. As I sit here, I am waiting to hear the results of the biopsy my sister had last week. You took my father-in-law from his family. You have danced in and out of my mother's life multiple times, taunting and teasing her to the point where she lives in fear that she will some day succumb to you in some way or another. She's had two scares from her doctor about you in the past year and even the simple thought of you has driven us all to distraction. You've robbed a friend of mine of his speaking voice. You tortured my cat who used to cry all night in pain from a tumor that we couldn't afford to treat. You killed my favorite postal clerk. Last, but not least, you ravaged Tate's friend's Mom and left her going for one reconstructive surgery after another in an attempt to restore her to the way she was before you fucked her up.



I despise you. I despise what you do. You create fear and panic, sorrow and dismay. Sometimes you're quick...too quick...you take people away before anyone can be prepared for it. My Mom's cousin was a sheriff in Caldwell county, but once he found out about you, he had less than a month to live. And sometimes you take your time and work your magic ever so slowly. You change, sometimes you feel like a little of this...but then you change your damn mind and decide to go for something else. Another one of my Mom's cousins just gave into her battle with you after having breast cancer and then battling other areas you decided to attack...until you set your sights on her brain, you son-of-a-bitch...how the hell was she supposed to contend with that?



I don't know what it is about you that I hate the most. Is it the fact that you are sneaky and almost always different...making you an impossible disease to eradicate? Is it that you destroy a person's sense of self? Is it that you rob children of their innocence and childhoods? Is it that you cut lives, that have so much left to be lived, short? Is it that you create a hysteria that makes us constantly search for ways to prevent you from entering our lives? Is it that people are so afraid of you that some go to such extremes as double mastectomies in the hope of never having to deal with you? People are willing to lop off any parts that you may be contaminating. They are willing to poison themselves, in ways no one on Earth would ever consider doing otherwise, in the hope that you will retreat. But are the people you've touched, and lived to tell about it, ever really free of you?



You don't care, you're a disease, what the fuck is it to you anyway? You doing your job and that's all you care about...everything else be damned. I swear, if you were a person, I'd get a posse together and we would kick your fucking ass...stomp you into a greasy spot. If only it were that simple. But since the dawn of modern medicine, you've stumped us all. I know that we'll cross paths again...since you're all over the place. But I can guarantee that my animosity for you will never wane.



Fuck you, Cancer!

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Driving Rant - Turn Signals & Roundabouts

There is a new epidemic I find when I am out on the roads these days and it has prompted me to ask the question: when you are sitting at the steering wheel do you ever wonder what that stick that sticks out from the left side of the steering column does?

If you've never really noticed it, you should try it out. Go ahead, give it a shot. If you flick it up, a little arrow points right. Flick it down and a little arrow points left. What does this all mean? It's a TURN SIGNAL. The idea behind this nifty little gadget is to alert people who are driving behind you to any turns you may be making. Since the majority of drivers are not psychic and cannot anticipate your every move, it's really a worthwhile invention.

Usually, you want to signal as you are approaching the intersection where you are turning. If you turn the signal on mid-turn, it does no good for the poor driver behind you.

BUT the turn signal isn't just for turns!! You can also use it for passing. It's a safety measure to let the people around you know your intentions. And with more and more people passing on the right, which is another rant in and of itself, a turn signal may draw attention to you and keep someone from pulling over into your lane.

This brings me to my second point, in the US, there aren't that many roundabouts. There are some in the larger, older cities but in suburban America they are few and far between. Well, until now, that is. I am finding more and more roundabouts in the area I live in.

Roundabouts are designed to keep traffic flowing at intersections. Unlike the four-way stop, drivers can just merge into the flow of traffic and go about their merry way. I go to England, the land of the roundabouts, once a year and have been exposed to some crazy roundabouts that consist of like 8 interchanging circles. But they work because drivers there know how to use them.

When you approach a roundabout you turn on your right turn signal and yield to any oncoming traffic. Once you enter the roundabout, do not yield to traffic waiting to enter. As you approach the "spoke" where you are going to exit, turn your right signal. It lets the other drivers waiting to enter the roundabout know where you are turning off. That makes the difference between a stop and a yield and improves the efficiency of the roundabout and traffic flow. I know this all seems like common sense, but apparently it is not, gauging from how some of the bumpkins around here drive.

I'm debating which irksome topic I want to tackle next...if you have any suggestions, feel free to give me a shout!

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